We are excited to be able to share the invitation for this online study investigating how functional neurological disorder (FND) affects people’s physical activity and quality of life. The study is being run by researchers at the York St John’s University, and involves completing a single online questionnaire. The full information from the researchers is below.
FND Research Connect members have already been emailed an invitation to this study. If you haven’t received an invitation, You can access the access the survey by clicking this link. If you have questions that aren’t answered in the information, you can email the researchers directly, at laura.graham@yorksj.ac.uk. Enrolment for the study closes on the 30th of April 2026.
If you want to make sure you know about future functional neurological disorder research as it begins, consider enrolling in FND Research Connect so that you can hear about new studies as they begin.
People with Functional Neurological Disorder (FND) often face challenges that affect their daily lives, but there is still very little research that looks at what everyday physical activity, rest, and quality of life actually look like for this community. Other neurological conditions, such as Multiple Sclerosis and Parkinson’s, have had this type of research for many years — and it has helped improve understanding and support. FND deserves the same level of attention.
This study aims to help fill that gap. It is an international online survey for adults with FND, and it asks about your day‑to‑day activity levels, how much time you spend sedentary (sitting or resting), and how these things relate to your overall wellbeing. The survey is based on a well‑known physical activity questionnaire, but adapted to make the language clearer, more inclusive, and easier for people with FND to use.
By taking part, you will be helping to create the first dataset of its kind for the FND community. Your responses will help researchers and clinicians better understand the real‑life experiences of people with FND and will support future research aimed at improving care, guidance, and support.
The survey is short, anonymous, and open to adults with FND worldwide. Every response makes a difference.
